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SebastianSleepSquad
Story
Angelman syndrome (AS) is a rare neurogenetic disorder that affects approximately one in 15,000 people – about 500,000 individuals worldwide. Children and adults with AS typically have impaired motor and balance, and debilitating seizures. Some individuals never walk. The majority do not speak. Disrupted sleep cycles also can be a serious challenge to the individual and caregivers. A lack of sleep is one of the most testing symptoms. To raise awareness and to support promising research and clinical trials for treatments we are committing to 8 hours of sleep between 6:00am Friday 25th September and 6:00am on Sunday the 27th.
You can join us for the sleepless in September Challenge by walking a few nights in our shoes (or slippers!) and setting up your own challenge or donating to buy us extra hours sleep (10 donations buy an extra hour!).
For ideas and fun things to do during the challenge you can join the facebook group here https://www.facebook.com/events/654935341782135/
Disclaimer. This is tough, lack of sleep can affect your ability to perform day to day tasks, please bear this in mind if you have work involving driving or equipment.
Foundation for Angelman Syndrome Therapeutics Australia Limited
The Foundation for Angelman Syndrome Therapeutics Australia (or FAST Australia) is an organisation of families and professionals dedicated to assisting individuals living with Angelman Syndrome to realise their full potential and quality of life through funding research, education, and advocacy. Our focus is treatments that will improve the symptoms of Angelman syndrome and ultimately research that will provide a cure.